Ratings5
Average rating4.1
A freelance writer describes, in-depth, her life living on the Autism spectrum after learning in her forties that she was autistic, which brought her understanding of her life-long difficulties navigating through life. Simultaneous eBook.
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I've been picking up books on Autism since we realized my husband was on the spectrum, in hopes of finding tools to help us manage daily life. He's too busy with school and work to do much reading these days, so I've been doing the research and bringing it to him to discuss. It's led to some enlightening conversations and we've both learned a lot about each other. Cynthia Kim's blog was one I pored over and read parts of to him, and I finally got her book from my library.
One of the things I noticed most was she details social rules in ways I never would have thought to do - she has a list of seven very specific rules for eye contact, for example. As an allistic person, most of those rules are things I do instinctively, without even really knowing the reason for them. Like, in conversation, looking up or to the side means you're thinking, looking down means you're done talking. I read that to my husband and he jumped in, surprised, with “so THAT'S why I get interrupted so much!” I never would have thought to codify that into words, but it's something I naturally do.
She talks about meltdowns vs shutdowns, which are things we've already learned the difference between with my husband, but we're both eager for strategies to avoid, mitigate, and recover from them. She gave some strategies as places to start, but that's hard to give general advice on as every autistic is so very different in that regard.
The chapter on alexithymia was really interesting. Alexithymia being an impairment in identifying and describing emotions. It leads to a lot of “Hey, are you okay?” “I don't know.” “Well, how do you feel?” “I DON'T KNOW!” We'd already been introduced to this concept through her blog, but she expands on it in the book.
Another interesting (and applicable!) chapter was the one on executive dysfunction. (We joke that I am my husband's personal assistant - I keep his calendar and remind him of important dates/events/homework due dates, and sometimes nudge him to do things if it seems he's having trouble getting started.)
Kim uses the term Asperger's in her writing (as well as autism), but Asperger's has been rolled into the greater Autism Spectrum Disorder since 2013. Very recently there's been some debate about the Asperger name, as it's been revealed that Hans Asperger at least cooperated with the Nazis, and possibly was one himself. It's still used commonly, though, and there is a large community built around being Aspies. Personally, I think using the Asperger term is a little too divisive - it's basically the same as “high-functioning.” But. I'm allistic and my opinion on the matter isn't the important one, so. We use autistic for my husband. (His choice, and when I asked his thoughts, he also thinks the Asperger term is divisive and not useful.) There's a number of Twitter threads and articles on the subject of using or not using the Asperger term, and what it means to the community.
Overall, this was a really great book for learning about how autism affects day-to-day life, and gave us lots of talking points and words for things we didn't have the vocabulary for. I'm looking forward to tackling the rest of my Autism Reading List.
You can find all my reviews at Goddess in the Stacks.