Ratings1
Average rating4
Five years ago, Andrea Gillies— writer, wife, and mother of three—seeing that her husband's parents were struggling to cope, invited them to move in. She and her newly extended family relocated to a big Victorian house on a remote, windswept peninsula in the far north of Scotland, leaving behind their friends and all that was familiar; hoping to find a new life, and new inspiration for work. Her mother-in-law Nancy was in the middle stages of Alzheimer's Disease, and Keeper charts her journey into dementia, its impact on her personality and her family, and the author's researches into what dementia is. As the grip of her disease tightens, Nancy's grasp on everything we think of as ordinary unravels before our eyes. Diary entries and accounts of conversations with Nancy track the slow unravelling. The journey is marked by frustration, isolation, exhaustion, and unexpected black comedy. For the author, who knew little about dementia at the outset, the learning curve was steeper than she could have imagined. The most pernicious quality of Alzheimer’s, Gillies suggests, is that the loss of memory is, in effect, the loss of one’s self, and Alzheimer’s, because it robs us of our intrinsic self-knowledge, our ability to connect with others, and our capacity for self-expression, is perhaps the most terrible and most dehumanizing illness. Moreover, as Gillies reminds us, the effects of Alzheimer’s are far-reaching, impacting the lives of caregivers and their loved ones in every way imaginable. Keeper is a fiercely honest “glimpse into the dementia abyss”—an endlessly engrossing meditation on memory and the mind, on family, and on a society that is largely indifferent to the far-reaching ravages of this baffling disease.
Reviews with the most likes.
This is a exceptional book but it is not an easy read and with that I recommend it to only those with a genuine interest in the subject. Unless one can relate to the author and her families predicament then they will subject themselves to pages of family related trauma, trauma that not all will want to read about or imagine.
What the author has offered is a view into a world that some will never relate to and with any luck never have to. My mum was recently placed in care, though my family were never full time carers we had a long road to travel to get her from her being alone in the family home to the assisted living that she needed. Many of the issues raised in this book were incredibly close to the bone and I found myself reading deep into the evening as I related to event after event that the author so articulately expressed with her sharp eye and ear and her deep sense of frustration. The author was also aware of the depth of power her family story may have had on the reader, so by interspersing the narrative with medical discussion through to philosophical debate she was able to give the reader an almost welcome break from the drama of the utter sadness of the story. This was constantly thought provoking and useful to the likes of me, someone who likes to have a some modicum of understanding as to life's personal and challenging events.
I see that this book has won both the Orwell Prize and the Wellcome Trust Book Prize. If this is indicative of the quality of the books that have won or even been nominated for these awards then these award winners must be of the highest quality in their fields.
Not only highly recommended to those with an interest in this subject but an absolute must.